We’ve carefully selected these blogs because they are actively working to educate, inspire, and empower their readers with frequent updates and high-quality information. If you would like to tell us about a blog, nominate them by emailing us at [email protected]!
Alzheimer’s disease is a memory loss disease that affects more than 5 million people in the United States alone. It can affect anyone at any age, but most people are around 65 years old when it starts.
It has been said that when you meet a person with Alzheimer’s or dementia, you’ve met… one person with Alzheimer’s or dementia. That’s because symptoms reveal themselves differently in different people. No two people who develop Alzheimer’s follow the same path.
But whatever your journey with Alzheimer’s or dementia looks like — whether you have it, or know someone who does — you are not alone. Online resources like the following blogs offer a wealth of knowledge and support for people are just starting on their journeys with memory loss disease or who need a place to help sustain them through the trying times.
Alzheimer’s Reading Room
Bob DeMarco is the founder of the Alzheimer's Reading Room and is an Alzheimer's caregiver. His inspiration for the blog was his mother Dorothy, who lived with Alzheimer's disease. He sets out to give other caregivers a place where they can find high-quality and accurate information to better help them in their new roles, and to help them realize that they aren’t alone in their journey. Visit the blog or tweet him @ALZHEIMERSread.
Sharing My Life with Lewy Bodies Dementia
Lewy body dementia (LBD) is a form of dementia with Parkinson’s syndrome-like symptoms. This means that motor skills are compromised. The author of this very direct and personal blog talks extensively about what it’s like to have your memory and motor skills compromised, as well as what it’s like to live with hallucinations, which is also another prominent symptom of LBD. Visit the blog.
Elder Care at Home’s Blog
Written by the staff at Elder Care at Home, this blog is a thoroughly documented referral service for family members looking for support at home. They offer a multitude of services, including Alzheimer’s and dementia care. They also offer tips, suggestions, and transition guidelines for family members who are living with memory loss disease. Visit the blog or tweet them @ElderCareatHome.
Early Onset Alzheimer’s Blog: Encourage, Inspire, and Inform
Linda Fisher launched this blog after her husband, Jim, was diagnosed with Alzheimer’s. She immediately assumed the role of caregiver and set out to learn everything she could about the disease, from both the patient’s and the caregiver’s points of view. Her blog is a trove of information about what it’s like to care for a loved one with Alzheimer’s and dementia. It also includes information on advocacy for the Alzheimer’s Association and other groups that provide education about memory loss disease. Visit the blog.
Alzheimer’s Speaks Blog
Lori La Bey is the creator of the Alzheimer’s Speaks Blog. Her goal is to “shift society’s negative perception of aging and illness.” The site boasts a broad range of topics, including personal stories, different techniques for caregiving, and lessons learned. La Bey also hosts a podcast, where she discusses many Alzheimer’s-related issues. Visit the blog or tweet her @AlzSpks.
Memories from My Life
As with many other memory loss blogs, Pat White got her inspiration from a personal experience. Her mother was diagnosed with Alzheimer’s and so began Pat’s journey, too. Her blog features personal anecdotes covering what it’s like to care for her mother, as well as scientific news about the latest research and breakthroughs in memory loss disease. Visit the blog.
Living in the Shadows of Alzheimer’s
Blog author Sheri is the caregiver of her husband Bob, who was diagnosed with early onset Alzheimer’s and frontal lobe dementia. Her blog incudes resources from various organizations and support groups, plus products such as puzzles for people with Alzheimer’s to complete. She also has a special section for poetry. Visit the blog.
Help! Aging Parents
Help! Aging Parents is the brain child of Susan. She is committed to ensuring that people get as much out of life as possible, no matter what their age. Her blog is filled with tips about caring for aging parents, many drawn from personal accounts of how she and her brother cared for a parent with a broken a hip. Her topics range from a special section on gift ideas to step-by-step guides for personal care issues. Visit the blog.
Alzheimer’s Association Blog
The official blog of the Alzheimer’s Association, this is the go-to resource for those on the front lines of Alzheimer’s. Caregivers, patients, and anyone who is touched by the disease can find what they need. Personal stories about caregiving and raising awareness, useful tools and resources, information about advocacy efforts — it’s all here in one place. Visit the blog or tweet them @alzassociation.
Alzheimer’s & Dementia Weekly
Readers can find over 1,000 articles on a bevy of topics associated with Alzheimer’s and dementia. Along with caregiver tips and diagnosis primers, you’ll also find legal advice, the latest information on Alzheimer’s research, insights on how to adjust your daily life, and much more. This blog is not to be missed. Visit the blog or tweet them @AlzDemWeekly.
Truthful Loving Kindness
This is the personal blog of Belinda chronicling her own journey. She has mild cognitive impairment (MCI), a predecessor to Alzheimer’s. Belinda holds nothing back, providing details of when her first symptoms started to reveal themselves in 1999 at age 41. She also features contributors who are eager to share their journeys with dementia through powerful personal stories. Visit the blog.
The Long and Winding Road
When Ann Napoletan’s mother was diagnosed with Alzheimer’s, everything changed. Her world was turned upside down, but she decided to create her blog to educate the masses and advocate for people who have the disease. She lists a bevy of resources and recommended reading, including other blogs. She is also the founder of Marilyn’s Legacy, a nonprofit she started to increase Alzheimer’s awareness. Visit the blog or tweet her @alzjourney4m.
Dealing with Alzheimer’s Blog
This personal blog was started by Kris when she was diagnosed with early onset Alzheimer’s at age 46. Today, she is 61 years old and still writing about her experiences in a touchingly honest way. She shares the challenges of her day-to-day activities, what her symptoms are like, and what it’s like being a grandmother with Alzheimer’s. Visit the blog.
Dementia Diaries: A Journey with Dementia
Author Cassandra Jones started this blog soon after her mother was diagnosed with semantic dementia, which impacts behavior, in 2012. She had discovered that there weren’t many resources available online to help her as a caregiver or her mother as a patient. Along with writing about their shared journey, Cassandra also founded the DEANA Foundation, a nonprofit whose goal is to help families with the overwhelming cost of caring for a family member with dementia. Visit the blog or tweet her @deanafoundation.
Alzheimer’s Insights: An ADCS Blog
This blog is devoted to serious research on dementia and Alzheimer’s. Links to the most up-to-date academic research are in abundance here. Readers can get access to clinic sites, upcoming studies, funding, and organizations all working toward a common goal: finding a cure for memory loss disease. Visit the blog.
Dealing with Dementia
The blog chronicles the journey of a dementia caregiving. The author Kay gives advice on how to navigate the early stages of the disease, when to stop driving, and how to get financial support. Come here for actionable advice on how to deal with real issues the dementia community faces. Visit the blog.
Alan Arnette’s Alzheimer’s Blog
A well-known mountain climber whose mother was diagnosed with Alzheimer’s disease, Alan Arnette works closely with several nonprofit organizations aimed at preventing Alzheimer’s through research, awareness, and clinical trials. On his blog, he writes openly about his family. He also shares interesting links and videos related to Alzheimer’s. Visit the blog or tweet him @alan_arnette.
Allan S. Vann’s Blog
In 2016, Allan S. Vann lost his wife to Alzheimer’s disease after a 10-year battle. On his blog, Allan writes about the disease and his experiences as a caregiver, as well as his hopes for the future. He also links to his writings, which have appeared in the Huffington Post and the Annals of Long Term Care, among others. Visit the blog.